If we’re recovering, or at least wanting to recover - how do we go about trying to ‘do more’ without triggering relapse, or worsening symptoms?
What exactly is PEM, and do all long haulers suffer from it?
And what role is there for autonomic conditioning in all of this?
In this video I try to answer all of these questions, using both published science and some theorising of my own.
CONTENTS:
0:00 Introduction
1:30 The Two Types of LC
5:54 What is PEM?
8:14 Autonomic Conditioning
11:29 My Experience
14:22 Summary
RESOURCES:
Canadian Criteria for ME/CFS:
https://me-pedia.org/wiki/Canadian_Consensus_Criteria
Nature Comms: Two Types of Long Hauler (paraphrasing!):
https://www.nature.com/articles/s41467-022-32507-6
Mt Sinai Recovery Plan for Long Covid (with Dr David Putrino):
https://youtu.be/f0ehpsv-2TE
Polyvagal Theory (With Dr Sally Riggs):
https://youtu.be/fv51b3j91jg
Great presentation from Prof. Perikles Simon on exercise intolerance in LC (starts at 47 mins):
https://vimeo.com/771944349?ref=tw-v-share
The 'Right Kind of Dysautonomia' clarification:
If you have POTS you may benefit from a different kind of autonomic conditioning (eg reclining exercises) than if you have headaches and GI issues (which may benefit from breathwork/meditation). But this isn't a hard edged science!
Watch my second channel! It's called Flip the Script and it's great:
https://www.youtube.com/user/acheronfilmsuk