Sunlight Is Deadly To Our Two Daughters | MY EXTRAORDINARY FAMILY

SUBSCRIBE to Truly: http://bit.ly/Oc61Hj SISTERS Amielle, 8, and Taya, 3 from Sydney, Australia both have Xeroderma Pigmentosum, a very rare condition that means if the girls are exposed to sunlight their skin can be burnt very badly. Amielle’s first burn happened when she was just three and a half months old. Initially doctors said that she just had sensitive skin and it wasn’t until Amielle was 7 that she was finally diagnosed with XP. After the diagnosis the family took a DNA test and discovered that Taya also has the rare condition. The girl’s parents, Nick and Yvette have to take a number of safety measures when the sisters go outside. To ensure they are not exposed to any UV light at all the girls have to wear a thick layer of sunblock, gloves and a protective visor before leaving the house. Nick and Yvette hope to raise money via GoFundMe to build a covered play area in their garden so the girls can have fun outside freely. Due to their condition Amielle and Taya can only visit the beach at night to be completely safe. Truly visited the family during one of their evening trips to their local beach to see them all enjoy the seaside together. Videographer: Chris Butle Producers: Tom Jones, Yasmin Walker Editor: Shiona Penrake, Paul Zeller If you have an amazing story and want to appear on the show, please email [email protected] and the team will be in touch! For licensing and archive requests, please email the licensing team: [email protected] Click below to follow your favourite Truly shows on social media! TikTok: Truly - https://www.tiktok.com/@truly_show Transformed - https://www.tiktok.com/@transformedshow Love Don’t Judge - https://www.tiktok.com/@lovedontjudgeshow Snapchat: Born Different - https://bit.ly/3XluKiQ Hooked On The Look - https://bit.ly/3Xi0UM6 My Extraordinary Family - https://bit.ly/3XkEDNJ Love Don’t Judge - https://bit.ly/3Z05bFe Dating Different - https://bit.ly/3XkRbEU Miami Muscle - https://bit.ly/471TQX8 Rahki’s World - https://bit.ly/3yL9lX3 Brand New Me - https://bit.ly/3MtxpRb Bling Life - https://bit.ly/3Xi0Agv Transformed - https://bit.ly/45bDs3R Shake My Beauty - https://bit.ly/3Z18hZH Facebook: Born Different - https://www.facebook.com/BornDifferentShow/ Hooked On The Look - https://www.facebook.com/HookedOnTheLook My Extraordinary Family - https://www.facebook.com/myextraordinaryfamilyshow Love Don’t Judge - https://www.facebook.com/lovedontjudgeshow Shake My Beauty - https://www.facebook.com/ShakeMyBeauty Truly - https://www.facebook.com/TrulyShow/ Instagram: Truly - https://www.instagram.com/trulyshow Born Different - https://www.instagram.com/borndifferentshow/ Shake My Beauty - https://www.instagram.com/shakemybeauty/ Hooked On The Look - https://www.instagram.com/hookedonthelookshow/ Love Don't Judge - https://www.instagram.com/lovedontjudgeshow/ WhatsApp: Truly - https://whatsapp.com/channel/0029Va7rMHN3LdQb9EImSq1k Born Different - https://whatsapp.com/channel/0029Va7LtVj5vKAECosskZ3W Shake My Beauty - https://whatsapp.com/channel/0029Va6zwHg3QxRwc7oziV2f Hooked On The Look - https://whatsapp.com/channel/0029Va73ZzGFsn0jE5Qccg2K Love Don't Judge - https://whatsapp.com/channel/0029Va6nERS3wtb0ygxXSl3X My Extraordinary Family - https://whatsapp.com/channel/0029Va7KtwY4Y9lltHCqba2N Transformed - https://whatsapp.com/channel/0029Va7EJ2y4inor5ddlOe1z