RARE INFO SERIES | Episode : 01 | Bardet-Biedl Syndrome | ORDI | #bardetbiedlsyndrome
Topic: Bardet-Biedl Syndrome – Tales, Trials & Triumphs from Birmingham!
Welcome to the first episode of ORDI’s Rare Info Series, where we bring real stories, scientific insights, and community voices together to raise awareness about rare diseases.
In this episode, we take a closer look at Bardet-Biedl Syndrome (BBS) — a rare genetic disorder affecting multiple body systems. Through compelling tales from Birmingham, we explore the personal journeys, medical trials, and inspiring triumphs of individuals and families affected by BBS.
💡 What you’ll learn:
What is Bardet-Biedl Syndrome?
The challenges faced by those living with BBS
Real-life patient stories and caregiver perspectives
Advances in diagnosis and management
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#RareInfoSeries #BardetBiedlSyndrome #RareDiseasesIndia #ORDI #BBSAwareness #PatientVoices #RareDiseaseStories #GeneticDisorders